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Neuromuscular Disease Foundation for GNE myopathy
About
Newly Diagnosed
Understanding GNE Myopathy
Find a Specialist
Living with GNE Myopathy
Treatments & Research
Support Groups
Patient Stories
Gene Therapy
Contact Us
DONATE NOW
Neuromuscular Disease Foundation for GNE myopathy
About
Newly Diagnosed
Understanding GNE Myopathy
Find a Specialist
Living with GNE Myopathy
Treatments & Research
Support Groups
Patient Stories
Gene Therapy
Contact Us
DONATE NOW
About
Folder: Patient Resources
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Newly Diagnosed
Understanding GNE Myopathy
Find a Specialist
Living with GNE Myopathy
Treatments & Research
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Support Groups
Patient Stories
Gene Therapy
Contact Us
DONATE NOW
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Rare Affair

  • Sunday, January 10, 2027
  • 6:30 PM 9:00 PM
  • Google Calendar ICS

269 S. Beverly Drive, Suite 1206, Beverly Hills, CA 90212

(310) 929-0295

info@curegnem.org

NDF is a 501(c)(3) nonprofit organization. EIN 06-1789643. Donations are tax-deductible in the United States to the extent allowed by law.

This website provides general information about GNE myopathy. It is not medical advice. Please discuss your own care with a qualified clinician.