Whether you’re living with GNE myopathy, supporting a loved one, or looking to advance our mission, we’re here to help you connect with the right person.

Patient support & general inquiries

For help finding resources, getting involved, donations, or media inquiries:
info@curegnem.org

Research & scientific collaboration

For questions about our research programs and opportunities to collaborate:
Science@CureGNEM.org

Call us

(310) 929-0295

Mailing address

Neuromuscular Disease Foundation
269 S. Beverly Drive, Suite 1206
Beverly Hills, CA 90212

Our team works across several time zones. We aim to respond within two business days.